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About Us
Our staff & volunteers
Our dedicated Board of Directors Christina Cabral, Jordana McGee, Christina Cunningham, Christopher Arredondo bring their years of experience in disability education and awareness, health care, technology, business and fund raising to Uniquely Me. Together our team continues to pursue our mission of awareness through education and celebrating all of our families who are unique and beautifully made.
Our history
I still remember hearing the news that my son had no arms. It really is like the floor drops out from below you in that moment. Nicholas was born with TAR Syndrome (Thrombocytopenia Absent Radius) which results in missing the radial bone and a lack of platelets in the blood which is what helps our blood clot and prevent blood loss. Of course there are other symptoms associated with TAR however these two are always present.
When I received the news we were then confronted with the reality that most people (even medical) did not have a clue how to actually support families to really live and thrive in the life we are given, which included disability.
We experienced over 90 transfusions, weekly hospitalizations and 9 surgeries in Nicholas's first 6 years. We've met families while traveling for life changing surgery and therapy. We have experienced first hand the strain and challenge of accessing the day to day world that is not built for our families and the challenges of encountering a lack of awareness and education in limb differences. We built Uniquely Me to bridge that gap and to help create accessible opportunities to education the community and to provide meaningful support for our families.
Our mission
Every single person is wonderfully and uniquely made. Uniquely Me Foundations mission is to celebrate TAR Syndrome and Limb Differences by raising awareness through education and support. Together we can make that happen.
